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Galen Warden
- Aug 29, 2022
- 7 min
Crash Prevention
The most urgent thing you can do to prevent someone with Mild ME/CFS or Long Covid from becoming as severely ill as my son James, who is...
1,180 views0 comments
Galen Warden
- 6 days ago
- 2 min
The Gurney Guide for Severe ME Transportation
An extensive guide helps you find and use gurney (stretcher) transportation.
157 views0 comments
Galen Warden
- Feb 12
- 3 min
Mining the Nerve
Today I'm writing about telling our story, because this is an important moment in my journey with James. We had a very emotional day...
77 views1 comment
Galen Warden
- Feb 2
- 10 min
Too Sick for Help?
Getting a bed-bound person to the doctor should not be impossible.
479 views2 comments
Galen Warden
- Dec 15, 2022
- 4 min
#Winning, a Mother's Story
Caring for a Severe ME son requires battling monsters, especially your own.
86 views0 comments
Galen Warden
- Nov 4, 2022
- 4 min
What is Life?
When you can no longer do anything that made you "you," what does Life mean?
61 views0 comments
Galen Warden
- Oct 28, 2022
- 10 min
A Kick in the Teeth
Basic needs, like dental care, are ignored for bed-bound severely ill patients until it's an emergency. And then you wait.
102 views0 comments
Galen Warden
- Sep 11, 2022
- 12 min
Severe ME Communications
A guide to understanding and communicating with severe Long Covid and ME sufferers with few or no words.
343 views0 comments
Galen Warden
- Sep 8, 2022
- 6 min
Toileting in the Bed
Seeing the effort and difficulty, the PEM, I should have begun toileting him in the bed sooner. But I had no guidance like this.
696 views0 comments
Galen Warden
- Aug 8, 2022
- 4 min
A Journal of James
This is a chapter from a forthcoming memoir chronicling my experience as I care for my adult son, James Strazza, with Very Severe ME/CFS.
528 views0 comments
Galen Warden
- Apr 17, 2021
- 2 min
Sugar-Free Salty-Sweet Granola Bars
Homemade Granola Bars are delicious and healthy with no added sugar or sweeteners.
89 views0 comments
Galen Warden
- Aug 4, 2020
- 6 min
Through the Clouds
Flying with my dad was my introduction to being present, to finding beauty in an otherwise frustrating situation.
68 views0 comments
Galen Warden
- Jul 27, 2020
- 1 min
Pain Has a Love Language
Pain is its own language
Members only may oblige
With a response.
69 views0 comments
Galen Warden
- Jul 23, 2020
- 1 min
Bring Your "A" Game
I bring my A Game into the room. Into the dark I bring my quiet. No talking: A new language to memorize, practice, repeat. Conversation...
84 views0 comments
Galen Warden
- Jul 23, 2020
- 1 min
Your Body Speaks
Your urine is my urine now. Odor that no longer offends Becomes my odor. We are one. Your holy shit is my sacred duty Evidence of the...
51 views0 comments
Galen Warden
- Jul 23, 2020
- 1 min
The Bath
Burnout terrifies me. (There is no one else.) I sink into a just-hot-enough fragrant sea and lower Spent arms, breathing and freeing my...
42 views0 comments
Galen Warden
- Jul 23, 2020
- 1 min
Jump
Mini-rebellions: One more Scrabble turn A trip to the bathroom A long pause to daydream He needs me. Is it urgent? The text did not say....
18 views0 comments
Galen Warden
- Jul 23, 2020
- 1 min
Spring Rain
Six hours. The balm of rest A salve on my brittle, tired mind. A lullaby patters on my window Tiny dancers relay Spring’s promises in...
18 views0 comments
Galen Warden
- Jul 23, 2020
- 1 min
Two A.M.
Two a.m. Too little sleep. Move like a dream. Dream of sleep. Float like a ghost. Slow like a boat, Too little breath in these sails of...
15 views0 comments
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