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Galen Warden

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Resources

Link to or download useful government information, peer-reviewed research, and patient support relevant to Myalgic Encephalomyelitis, ME/CFS, and long COVID.

The new PDF, Medical Guidance: Supporting a Person with PEM, is an excellent piece. I don't know who the author is - but I have edited slightly and reformatted it. I've attempted to translate it into Spanish. PLEASE contact me if you are a native Spanish speaker and have edits to it.

Supporting a Person with PEM

Spanish 8.5 x 11"

English 8.5 x 11"

International Primer for Medical Practitioners

“Overload Phenomena: hypersensitive to many kinds of sensory input.” Mentions Lorazepam on page 18.

Nice Guidelines

Myalgic Encephalomyelitis NICE Guidelines

"People with very severe M.E./CFS need help with personal hygiene and eating, and are very sensitive to sensory stimuli. Some people may need to be tube fed."

What is ME_ MePedia

For Doctors, Families, Caregivers and Patients

Learn the Basics: resources which quote peer-reviewed papers and clinical trials for authoritative information by audience

CDC Overview of ME/CFS

Many topics regarding ME, including how to diagnose, focused on educating and supporting medical professionals.

Mayo Clinic

Clinician's Guide to ME/CFS

Essentials of diagnosis and management of myalgic encephalomyelitis for medical professionals

National Institute of Health

Parents as Caregivers for Severe ME

Medical description of Severe ME as "severely functionally impaired" and "25% reported being bedbound."

Memory Cortex Injury

SPECT Imagery Shows ME Brain Dysfunction

SPECT technology Identifies major microvascular brain pathology in ME, unseen on brain CT and MRI. PDF by Dr. Byron Hyde

Covid 19

Is Long COVID the Same as ME/CFS?

Margaret Williams explains how ME can be caused by COVID, as with other infections like Epstein Barr, and cites validating research.

How To Get On

How to Get On

Great resource if you're applying for disability in the U.S. Helps with detailed information plus instructions and language to use.

EveryLife Foundation

Financial Assistance

Provides a list of possible resources for medical and travel expenses. I don't know which of these might help with ME/CFS. Hoping someone can get some help here.

Encephalogirl

Living Below the Threshold: Pacing

Encephalogirl provides extremely helpful and easy-to-understand advice to conserve energy and prevent PEM/ crashes.

UTAH Healthcare Power of Attny

Utah Healthcare Power of Attorney Form

Utah residents can download and complete this form to enable a friend or family member to speak to doctors on their behalf.

ME Basics

Basic information about ME, symptoms, and support

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