Resources
Governments, scientists, patients and caregivers provide articles, research and support relevant to Myalgic Encephalomyelitis, ME/CFS, and Long Covid.
Internationally peer-reviewed document from 2012 is an essential reference for all medical practitioners. It crucially mentions Lorazepam for overstimulation from light, sound, touch or odors on page 18, under “Overload Phenomena: hypersensitive to many kinds of sensory input.”
Many topics regarding ME:
A patient provides extremely helpful and easy-to-understand advice about pacing. She explains heart monitoring, includes videos, and links to research, as well as products to help conserve energy.
EveryLife Foundation for Rare Diseases provides a list of possible resources for medical and travel expenses. I don't know which of these might help with ME/CFS needs, but the list is long. Hoping someone can get some help here.
SPECT Imagery Shows ME
Brain Dysfunction - PDF
by Byron Hyde, MD
An Introduction to Modern SPECT Technology for Identifying Major Microvascular Brain Pathology in M.E. and Toxic Brain Injury Invisible on CT and MRI Brain Mapping
Check out the book Understanding Myalgic Encephalomyelitis by Dr. Hyde
Article by Margaret Williams
November 2022