Resources

“Overload Phenomena: hypersensitive to many kinds of sensory input.” Mentions Lorazepam on page 18.

"People with very severe M.E./CFS need help with personal hygiene and eating, and are very sensitive to sensory stimuli. Some people may  need to be tube fed."

Learn the Basics: resources which quote peer-reviewed papers and clinical trials for authoritative information by audience

Many topics regarding ME, including how to diagnose, focused on educating and supporting medical professionals.

Essentials of diagnosis and management of myalgic encephalomyelitis for medical professionals

Medical description of Severe ME as "severely functionally impaired" and "25% reported being bedbound."

SPECT technology  Identifies major microvascular brain pathology in ME, unseen on brain CT and MRI.  PDF by Dr. Byron Hyde

Margaret Williams explains how ME can be caused by COVID, as with other infections like Epstein Barr, and cites validating research.

Great resource if you're applying for disability in the U.S. Helps with detailed information plus instructions and language to use.

Provides a list of possible resources for medical and travel expenses. I don't know which of these might help with ME/CFS. Hoping someone can get some help here.

Encephalogirl provides extremely helpful and easy-to-understand advice to conserve energy and prevent PEM/ crashes. 

Utah residents can download and complete this form to enable a friend or family member to speak to doctors on their behalf.