top of page

Resources

Governments, scientists, patients and caregivers provide articles, research and support relevant to Myalgic Encephalomyelitis, ME/CFS, and Long Covid.

EveryLife Foundation logo

EveryLife Foundation for Rare Diseases provides a list of possible resources for medical and travel expenses. I don't know which of these might help with ME/CFS needs, but the list is long. Hoping someone can get some help here.

Image of SPECT Brain Scan

An Introduction to Modern SPECT Technology for Identifying Major Microvascular Brain Pathology in M.E. and Toxic Brain Injury Invisible on CT and MRI Brain Mapping 

Check out the book Understanding Myalgic Encephalomyelitis by Dr. Hyde

Utah Health Care Power of Attorney/Proxy

Form PDF

Photo of Encephalogirl

A patient provides extremely helpful and easy-to-understand advice about pacing. She explains heart monitoring, includes videos, and links to research, as well as products to help conserve energy.

National Institute of Health

Article by Margaret Williams

November 2022

bottom of page