Galen Warden
Being Tough Saved John's Broken Feet
John can walk because, unlike James, he needed to push and work through his pain.
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Galen Warden
- Oct 2
- 5 min
A Central Nervous System Mystery
Standing in a corner of the hallway, the head of neurology, a hospital executive, and the patient advocate, discussed my very rare request.
86 views0 comments
Galen Warden
- May 11
- 7 min
Crash Prevention
Crash prevention and extreme rest can keep ME/CFS and Long Covid from getting worse.
2,631 views0 comments
Galen Warden
- Apr 26
- 9 min
Overwhelmed? You Need a Caregiver
Being overwhelmed with stress wasn't helping James. I got a caregiver.
214 views1 comment
Galen Warden
- Mar 20
- 2 min
The Gurney Guide for Severe ME Transportation
An extensive guide helps you find and use gurney (stretcher) transportation.
1,264 views2 comments
Galen Warden
- Feb 12
- 3 min
Mining the Nerve
Today I'm writing about telling our story, because this is an important moment in my journey with James. We had a very emotional day...
159 views4 comments
Galen Warden
- Feb 2
- 10 min
Too Sick for Help?
Getting a bed-bound person to the doctor should not be impossible.
583 views2 comments
Galen Warden
- Jan 14
- 5 min
For Family and Friends
Links to research and medical descriptions of ME.
2,296 views1 comment
Galen Warden
- Dec 15, 2022
- 4 min
#Winning, a Mother's Story
Caring for a Severe ME son requires battling monsters, especially your own.
120 views0 comments
Galen Warden
- Oct 28, 2022
- 10 min
A Kick in the Teeth
Basic needs, like dental care, are ignored for bed-bound severely ill patients until it's an emergency. And then you wait.
136 views3 comments
Galen Warden
- Sep 11, 2022
- 12 min
Severe ME Communications
A guide to understanding and communicating with severe Long Covid and ME sufferers with few or no words.
655 views0 comments
Galen Warden
- Sep 8, 2022
- 6 min
Toileting in the Bed
Seeing the effort and difficulty, the PEM, I should have begun toileting him in the bed sooner. But I had no guidance like this.
1,367 views2 comments
Galen Warden
- Aug 8, 2022
- 4 min
A Journal of James
This is a chapter from a forthcoming memoir chronicling my experience as I care for my adult son, James Strazza, with Very Severe ME/CFS.
565 views0 comments
Galen Warden
- Jul 27, 2020
- 1 min
Pain Has a Love Language
Pain is its own language
Members only may oblige
With a response.
80 views0 comments
Galen Warden
- Jul 23, 2020
- 1 min
Bring Your "A" Game
I bring my A Game into the room. Into the dark I bring my quiet. No talking: A new language to memorize, practice, repeat. Conversation...
92 views0 comments
Galen Warden
- Jul 23, 2020
- 1 min
Your Body Speaks
Your urine is my urine now. Odor that no longer offends Becomes my odor. We are one. Your holy shit is my sacred duty Evidence of the...
57 views0 comments
Galen Warden
- Jul 23, 2020
- 1 min
In One Small Room
The natural world joins my bed-bound son in his isolation.
180 views0 comments
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